{"id":158,"date":"2026-07-23T08:01:00","date_gmt":"2026-07-23T08:01:00","guid":{"rendered":"https:\/\/jonesingforthejourney.com\/journal\/?p=158"},"modified":"2026-08-12T21:21:06","modified_gmt":"2026-08-12T21:21:06","slug":"the-surgery","status":"publish","type":"post","link":"https:\/\/jonesingforthejourney.com\/journal\/the-surgery\/","title":{"rendered":"THE SURGERY"},"content":{"rendered":"<article class=\"jftj-mile-marker\">\n\n    <h2>Facing the Unknown and Finding Strength<\/h2>\n\n    <p>\n        There is something surreal about walking into a hospital knowing that when\n        you wake up, a part of your body will be gone.\n    <\/p>\n\n    <p>\n        My radical prostatectomy wasn&#8217;t simply a medical procedure.\n    <\/p>\n\n    <p>\n        It represented hope.\n    <\/p>\n\n    <p>\n        Fear.\n    <\/p>\n\n    <p>\n        Loss.\n    <\/p>\n\n    <p>\n        Possibility.\n    <\/p>\n\n    <p>\n        And the belief that removing the prostate might remove the cancer with it.\n    <\/p>\n\n    <p>\n        At that point in the journey, surgery felt like one of the biggest Mile Markers\n        we would ever cross.\n    <\/p>\n\n    <p>\n        I knew recovery would come afterward.\n    <\/p>\n\n    <p>\n        What I didn&#8217;t fully understand yet was how much surgery would teach me \u2014\n        not only about recovery, but about cancer, uncertainty, dependence, progress,\n        and the difference between what we hope is true and what the next piece of\n        information may reveal.\n    <\/p>\n\n\n    <h2>Preparing for Surgery Is Not the Same as Living It<\/h2>\n\n    <p>\n        Before surgery, you hear about recovery.\n    <\/p>\n\n    <p>\n        Catheters.\n    <\/p>\n\n    <p>\n        Pelvic-floor exercises.\n    <\/p>\n\n    <p>\n        Continence.\n    <\/p>\n\n    <p>\n        Sexual function.\n    <\/p>\n\n    <p>\n        Pain.\n    <\/p>\n\n    <p>\n        Walking.\n    <\/p>\n\n    <p>\n        Healing.\n    <\/p>\n\n    <p>\n        You can read about those things.\n    <\/p>\n\n    <p>\n        You can ask questions about them.\n    <\/p>\n\n    <p>\n        You can prepare for them intellectually.\n    <\/p>\n\n    <p>\n        Living them is different.\n    <\/p>\n\n    <p>\n        There is a difference between knowing that recovery may involve a catheter\n        and actually living your days around one.\n    <\/p>\n\n    <p>\n        There is a difference between hearing that continence may take time and\n        discovering what that means in everyday life.\n    <\/p>\n\n    <p>\n        There is a difference between talking about recovery before surgery and\n        waking up afterward realizing that recovery is no longer theoretical.\n    <\/p>\n\n    <p>\n        Now it is your life.\n    <\/p>\n\n\n    <h2>Recovery Takes Away Some of the Things We Take for Granted<\/h2>\n\n    <p>\n        Cancer treatment has a way of stripping away some of the privacy and\n        independence we rarely think about until they are gone.\n    <\/p>\n\n    <p>\n        Suddenly, things you never imagined discussing become part of everyday\n        conversation.\n    <\/p>\n\n    <p>\n        Bathroom habits.\n    <\/p>\n\n    <p>\n        Leakage.\n    <\/p>\n\n    <p>\n        Tubes.\n    <\/p>\n\n    <p>\n        Pain.\n    <\/p>\n\n    <p>\n        Sexual function.\n    <\/p>\n\n    <p>\n        Whether you need help getting up.\n    <\/p>\n\n    <p>\n        Whether you are ready to walk a little farther.\n    <\/p>\n\n    <p>\n        Things that once felt private can become clinical, practical, and necessary.\n    <\/p>\n\n    <p>\n        That can be humbling.\n    <\/p>\n\n    <p>\n        It can also be frustrating.\n    <\/p>\n\n    <p>\n        For me, part of recovery was learning that needing help for a while did not\n        mean I had stopped moving forward.\n    <\/p>\n\n\n    <h2>Sue Was There for All of It<\/h2>\n\n    <p>\n        And through all of it, Sue was there.\n    <\/p>\n\n    <p>\n        That part of the story matters.\n    <\/p>\n\n    <p>\n        Cancer may happen inside one person&#8217;s body, but it reaches far beyond the patient.\n    <\/p>\n\n    <p>\n        Recovery affects the person sitting beside the bed.\n    <\/p>\n\n    <p>\n        The person keeping track of instructions.\n    <\/p>\n\n    <p>\n        The person helping with things you never imagined needing help with.\n    <\/p>\n\n    <p>\n        The person wondering whether what you are experiencing is normal.\n    <\/p>\n\n    <p>\n        The person trying to encourage you while carrying fears of their own.\n    <\/p>\n\n    <p>\n        Sue was not simply watching my recovery.\n    <\/p>\n\n    <p>\n        She was living a version of it beside me.\n    <\/p>\n\n    <p>\n        That is one of the reasons I have come to think of the caregiver as the\n        co-pilot on this journey.\n    <\/p>\n\n    <p>\n        The patient may be the one in the hospital gown.\n    <\/p>\n\n    <p>\n        But neither person travels the road alone.\n    <\/p>\n\n\n    <h2>I Had to Redefine Progress<\/h2>\n\n    <p>\n        There were days when I was frustrated.\n    <\/p>\n\n    <p>\n        Days when I was scared.\n    <\/p>\n\n    <p>\n        Days when progress felt much too slow.\n    <\/p>\n\n    <p>\n        And then there were moments when something small felt enormous.\n    <\/p>\n\n    <p>\n        Walking a little farther.\n    <\/p>\n\n    <p>\n        Getting one tube removed.\n    <\/p>\n\n    <p>\n        Needing a little less help.\n    <\/p>\n\n    <p>\n        Having a better day than the day before.\n    <\/p>\n\n    <p>\n        Recovery taught me to redefine progress.\n    <\/p>\n\n    <p>\n        Before cancer, I think I often measured progress by large milestones.\n    <\/p>\n\n    <p>\n        Finish the project.\n    <\/p>\n\n    <p>\n        Reach the goal.\n    <\/p>\n\n    <p>\n        Solve the problem.\n    <\/p>\n\n    <p>\n        Recovery doesn&#8217;t always work that way.\n    <\/p>\n\n    <p>\n        Sometimes progress is quiet.\n    <\/p>\n\n    <p>\n        Sometimes it is measured in steps rather than miles.\n    <\/p>\n\n    <p>\n        Sometimes progress is simply:\n    <\/p>\n\n    <blockquote>\n        <p>\n            <strong>Today was a little better than yesterday.<\/strong>\n        <\/p>\n    <\/blockquote>\n\n    <p>\n        I learned to respect those victories.\n    <\/p>\n\n\n    <h2>Then Surgery Gave Us Information We Weren&#8217;t Expecting<\/h2>\n\n    <p>\n        Surgery was supposed to remove the prostate.\n    <\/p>\n\n    <p>\n        But it also gave us something else:\n    <\/p>\n\n    <p>\n        More information.\n    <\/p>\n\n    <p>\n        And that information changed the road ahead.\n    <\/p>\n\n    <p>\n        The final pathology showed that the cancer was more aggressive and more\n        extensive than we had hoped.\n    <\/p>\n\n    <ul>\n        <li><strong>Gleason 4+5=9<\/strong><\/li>\n        <li><strong>Extension outside the prostate<\/strong><\/li>\n        <li><strong>Seminal vesicle involvement<\/strong><\/li>\n        <li><strong>Positive surgical margins<\/strong><\/li>\n        <li><strong>Cancer in a lymph node<\/strong><\/li>\n    <\/ul>\n\n    <p>\n        Those were not abstract words on a pathology report.\n    <\/p>\n\n    <p>\n        They changed what we understood about my cancer.\n    <\/p>\n\n    <p>\n        They changed the questions we needed to ask.\n    <\/p>\n\n    <p>\n        And they changed what came next.\n    <\/p>\n\n\n    <h2>The Cancer Looked Different Under the Microscope<\/h2>\n\n    <p>\n        Before surgery, the imaging had appeared to suggest that the cancer was contained.\n    <\/p>\n\n    <p>\n        Then the tissue removed during surgery told a different story under the microscope.\n    <\/p>\n\n    <p>\n        That was difficult to absorb.\n    <\/p>\n\n    <p>\n        It would have been easy to look back and decide that one piece of information\n        had been &#8220;right&#8221; and another had been &#8220;wrong.&#8221;\n    <\/p>\n\n    <p>\n        But that is not the lesson I took from it.\n    <\/p>\n\n    <p>\n        The lesson was that different tests can provide different pieces of the picture.\n    <\/p>\n\n    <p>\n        Imaging gave us information.\n    <\/p>\n\n    <p>\n        Surgery gave us information.\n    <\/p>\n\n    <p>\n        Pathology gave us information.\n    <\/p>\n\n    <p>\n        And the picture became clearer as more pieces were added.\n    <\/p>\n\n\n    <div style=\"background:#f5f6f8;border-left:5px solid #d47a2a;padding:24px 28px;margin:36px 0;border-radius:8px;\">\n\n        <h3 style=\"margin-top:0;color:#082744;\">\n            A Lesson That Stayed With Me\n        <\/h3>\n\n        <p style=\"margin-bottom:0;font-size:1.08em;\">\n            <strong>\n                Never make an important decision based on a single piece of information.\n                Ask one more question.\n            <\/strong>\n        <\/p>\n\n    <\/div>\n\n\n    <h2>The Finish Line Moved<\/h2>\n\n    <p>\n        We had crossed the surgery Mile Marker believing that we might be approaching\n        the end of treatment.\n    <\/p>\n\n    <p>\n        Instead, we discovered another road ahead.\n    <\/p>\n\n    <p>\n        That may have been one of the harder emotional parts of the experience.\n    <\/p>\n\n    <p>\n        You prepare yourself for surgery.\n    <\/p>\n\n    <p>\n        You get through it.\n    <\/p>\n\n    <p>\n        You begin recovering.\n    <\/p>\n\n    <p>\n        And part of you wants to believe you have completed the hardest part.\n    <\/p>\n\n    <p>\n        Then new information arrives and tells you the journey is not finished.\n    <\/p>\n\n    <p>\n        That does something to you.\n    <\/p>\n\n    <p>\n        It forces you to adjust expectations before you have even finished recovering\n        from the last thing.\n    <\/p>\n\n    <p>\n        But that is what we did.\n    <\/p>\n\n    <p>\n        We adjusted.\n    <\/p>\n\n    <p>\n        We learned.\n    <\/p>\n\n    <p>\n        And we kept going.\n    <\/p>\n\n\n    <h2>Surgery Was Still a Mile Marker<\/h2>\n\n    <p>\n        Learning that more treatment might be ahead did not erase what surgery had accomplished.\n    <\/p>\n\n    <p>\n        It did not make the recovery meaningless.\n    <\/p>\n\n    <p>\n        And it did not mean crossing that Mile Marker had somehow been a failure.\n    <\/p>\n\n    <p>\n        Surgery was part of the journey.\n    <\/p>\n\n    <p>\n        It removed the prostate.\n    <\/p>\n\n    <p>\n        It gave us pathology.\n    <\/p>\n\n    <p>\n        It gave my doctors more information about the disease we were dealing with.\n    <\/p>\n\n    <p>\n        And it helped determine what questions needed to be answered next.\n    <\/p>\n\n    <p>\n        That distinction became important to me.\n    <\/p>\n\n    <p>\n        A treatment does not have to represent the end of the journey to still be an\n        important step forward.\n    <\/p>\n\n\n    <h2>Questions I Would Want to Ask Before Surgery<\/h2>\n\n    <p>\n        Looking back, I have learned how valuable it is to understand not only what\n        is going to happen during surgery, but what life may look like afterward.\n    <\/p>\n\n    <p>\n        Every patient&#8217;s situation is different, but these are the kinds of questions\n        I would want on my list:\n    <\/p>\n\n    <ol>\n        <li>\n            <p>\n                <strong>What should I realistically expect during the first few weeks of recovery?<\/strong>\n            <\/p>\n        <\/li>\n\n        <li>\n            <p>\n                <strong>What symptoms or changes should cause me to call the medical team?<\/strong>\n            <\/p>\n        <\/li>\n\n        <li>\n            <p>\n                <strong>What should I understand about continence recovery?<\/strong>\n            <\/p>\n        <\/li>\n\n        <li>\n            <p>\n                <strong>What should I understand about sexual function after surgery?<\/strong>\n            <\/p>\n        <\/li>\n\n        <li>\n            <p>\n                <strong>When will the final pathology be available, and what might it tell us that we don&#8217;t know yet?<\/strong>\n            <\/p>\n        <\/li>\n\n        <li>\n            <p>\n                <strong>If the pathology shows more extensive disease than expected, what happens next?<\/strong>\n            <\/p>\n        <\/li>\n    <\/ol>\n\n    <p>\n        Those are not questions that guarantee an easy recovery or an easy answer.\n    <\/p>\n\n    <p>\n        They are questions that may help you understand the road before you begin walking it.\n    <\/p>\n\n\n    <h2>What I Hope You Take From This Mile Marker<\/h2>\n\n    <p>\n        If you are preparing for surgery, I hope you give yourself permission to\n        think about recovery differently.\n    <\/p>\n\n    <p>\n        Progress may be slower than you want.\n    <\/p>\n\n    <p>\n        You may need more help than you expected.\n    <\/p>\n\n    <p>\n        Some days may feel like steps backward.\n    <\/p>\n\n    <p>\n        And the pathology report may bring information you were not prepared to hear.\n    <\/p>\n\n    <p>\n        None of that means you have stopped moving forward.\n    <\/p>\n\n    <p>\n        I learned that progress can be small.\n    <\/p>\n\n    <p>\n        I learned that accepting help is part of recovery.\n    <\/p>\n\n    <p>\n        I learned that one test does not always tell the entire story.\n    <\/p>\n\n    <p>\n        And I learned that what looks like the finish line may simply be another Mile Marker.\n    <\/p>\n\n    <p>\n        So when the road changed, we changed with it.\n    <\/p>\n\n    <p>\n        We asked the next question.\n    <\/p>\n\n    <p>\n        We prepared for the next step.\n    <\/p>\n\n    <p>\n        And we kept going.\n    <\/p>\n<div class=\"\"jftj-read-next\"\" style=\"\"background:#f5f6f8;padding:28px 30px;margin:40px 0;border-radius:10px;\"\">\n\n    <p style=\"\"color:#d47a2a;font-weight:800;text-transform:uppercase;letter-spacing:1px;margin:0 0 8px;\"\">\n        Continue the Journey\n    <\/p>\n\n    <h2 style=\"\"color:#082744;margin-top:0;\"\">\n        What to Read Next\n    <\/h2>\n\n    <p>\n        <strong><a href=\"#\"https:>The Surgery<\/a><\/strong><br>\n        Follow the next Mile Marker as the decision became real and I headed into radical prostatectomy.\n    <\/p>\n\n    <p>\n        <strong><a href=\"#\"https:>The Question<\/a><\/strong><br>\n        Read the patient-advocacy lesson that helped me evaluate information without relying on a single data point.\n    <\/p>\n\n    <p style=\"\"margin-bottom:0;\"\">\n        <strong><a href=\"#\"https:>The Treatment<\/a><\/strong><br>\n        See how the treatment story continued when surgery turned out not to be the final step.\n    <\/p>\n\n<\/div>\n\n\n    <div class=\"jftj-author-box\" style=\"background:#f5f6f8;border-left:5px solid #d47a2a;padding:24px 28px;margin:42px 0 30px;border-radius:8px;\">\n\n        <h3 style=\"color:#082744;margin-top:0;\">\n            About Mike Jones\n        <\/h3>\n\n        <p>\n            Mike Jones is the creator of <em>Jonesing For The Journey<\/em>, where he\n            shares his first-hand experience navigating prostate cancer diagnosis,\n            treatment, recovery, and patient advocacy.\n        <\/p>\n\n        <p>\n            JFTJ was created to help patients and families feel better prepared to\n            ask questions, understand the information in front of them, and take a\n            more active role in their own journey.\n        <\/p>\n\n        <p style=\"margin-bottom:0;\">\n            <strong>Medical Disclaimer:<\/strong>\n            This Mile Marker reflects my personal experience as a prostate cancer\n            patient. I am not a physician, and this content is provided for\n            informational and educational purposes only. Recovery after radical\n            prostatectomy, continence, sexual function, pathology results, and the\n            need for additional treatment can vary considerably from one person to\n            another. Always discuss your individual diagnosis, surgical plan,\n            recovery, pathology results, and treatment options with your own\n            healthcare team.\n        <\/p>\n\n    <\/div>\n\n\n    <p style=\"text-align:center;font-size:1.1em;margin-top:38px;\">\n        <strong>And So\u2026The Adventure Continues.<\/strong>\n    <\/p>\n\n<\/article>","protected":false},"excerpt":{"rendered":"<p>Facing the Unknown and Finding Strength There is something surreal about walking into a hospital knowing that when you wake up, a part of your body will be\u2026<\/p>\n","protected":false},"author":1,"featured_media":159,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_wp_convertkit_post_meta":{"form":"-1","landing_page":"0","tag":"0","restrict_content":"0"},"footnotes":""},"categories":[2,6],"tags":[29,15,16,19],"class_list":["post-158","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-mile-marker-journal","category-treatment-and-recovery","tag-cancer-journey","tag-prostate-cancer","tag-radical-prostatectomy","tag-surgery-recovery"],"_links":{"self":[{"href":"https:\/\/jonesingforthejourney.com\/journal\/wp-json\/wp\/v2\/posts\/158","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/jonesingforthejourney.com\/journal\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/jonesingforthejourney.com\/journal\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/jonesingforthejourney.com\/journal\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/jonesingforthejourney.com\/journal\/wp-json\/wp\/v2\/comments?post=158"}],"version-history":[{"count":3,"href":"https:\/\/jonesingforthejourney.com\/journal\/wp-json\/wp\/v2\/posts\/158\/revisions"}],"predecessor-version":[{"id":603,"href":"https:\/\/jonesingforthejourney.com\/journal\/wp-json\/wp\/v2\/posts\/158\/revisions\/603"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/jonesingforthejourney.com\/journal\/wp-json\/wp\/v2\/media\/159"}],"wp:attachment":[{"href":"https:\/\/jonesingforthejourney.com\/journal\/wp-json\/wp\/v2\/media?parent=158"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/jonesingforthejourney.com\/journal\/wp-json\/wp\/v2\/categories?post=158"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/jonesingforthejourney.com\/journal\/wp-json\/wp\/v2\/tags?post=158"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}